Tickets are still available for a benefit dinner, auction, and fashion show for Emily McNabb.
The 9-month old girl is under a sentence of death from a rare genetic disorder called spinal muscular atrophy (SMA). It is a degenerative illness that typically claims the lives of children before they reach age 2.
Her parents, Adam and Susan, are hoping to purchase a machine that could alleviate her suffering, but it costs about $5,000. There are other pieces of equipment that could help, too, but they are not covered under medical insurance.
“If it can’t help Emily, it can help another child,” Emily’s mom said. Her sister, Janet Patterson, started a trust fund for Emily at TD Canada Trust in Guelph. That account number for donations is 0516-6337349.
The benefit will be held Jan. 21 at Alex’s Restaurant in Elora. Owner Kevin Kroetsch knew Emily’s grandfather because they have coffee together every morning. George Howlett works for Sussman’s, in Arthur, and that store is supplying the fashions for the evening and providing those who attend with a $25 coupon for the store.
Clothing will be for men and women, and will come in various sizes.
There are two types of SMA. Type 1 victims usually do not live to age 2. Type 2 victims can live to reach adulthood. Emily has Type 1. There is no cure
The evening will include a five course dinner prepared by executive chef Dean Michielsen.
The cost of the food will be covered by the ticket price, and all labour will be donated.
Tickets for the benefit are $79 each and are available by calling the restaurant at 519-846-1104, or visit www.alexskichen.com.
